Future-proofing biobanks' governance

F Gille, E Vayena, A Blasimme - European Journal of Human Genetics, 2020 - nature.com
… ’ trustworthiness to stakeholders and the public in a long-term perspective. Given the ever-…
, we recommend that biobanks increase their efforts to future-proof their governance. …

Biobanking and risk assessment: a comprehensive typology of risks for an adaptive risk governance

K Akyüz, G Chassang, M Goisauf, Ł Kozera… - Life Sciences, Society …, 2021 - Springer
… of potential risks in biobanking, taking into consideration the perspectives of different …
of an adaptive risk governance as an integral part of good governance in biobanking. In this …

Current status and future challenges of biobank research in Malaysia

L Amin, A Olesen, Z Mahadi, M Ibrahim - Asian Bioethics Review, 2021 - Springer
… or the situation related to biobank research in Malaysia. There are … governance of the
national biobank as well as other privately owned biobanks in the nation, the public perspectives

Biobank networking and globalisation: perspectives and practices of Australian biobanks

E Light, M Wiersma, L Dive, I Kerridge… - Australian Health …, 2020 - CSIRO Publishing
… study of Australian biobanks and reveals contemporary practices and perspectives concerning
sample and data … It found most Australian biobanks currently take part in these activities. …

Anticipatory governance in biobanking: security and risk management in digital health

D Rychnovská - Science and engineering ethics, 2021 - Springer
… the governance of biobanking, biobanking and its controversies are introduced in more detail.
… Footnote 8 The debate on protecting privacy reveals differing perspectives on the value of …

[PDF][PDF] The governance of genomic biobank research in Africa: reframing the regulatory tilt

C Staunton, J De Vries - Journal of Law and the Biosciences, 2020 - academic.oup.com
… The experiences in developing regulations for genomic biobank research … biobank research
on the continent. Thus, while in many HICs the challenge for genomic biobank governance

Education for future biobankers-The state-of-the-art and outlook

J Kinkorová - Epma Journal, 2021 - Springer
… forms, trends of biobanking education offered by various biobanking related bodies and to
highlight future needs. The first step is to cover all activities and duties of biobanks: acquiring, …

A conceptualisation of a governance model for biobanks in the digital society

S Iacomussi - 2022 - amsdottorato.unibo.it
… The counterpoint of this optimistic vision is the reality of biobank governance, which must …
, from a bioethical perspective, the challenges and the goals of biobank governance in data-…

Phage biobank: present challenges and future perspectives

RCY Lin, JC Sacher, PJ Ceyssens, J Zheng… - Current opinion in …, 2021 - Elsevier
biobank and, as we build a national consortium aimed at delivering phage therapeutics,
suggest a roadmap toward national biobanking … for a national phage biobank, including its place …

Biobanks for biomedical research: evolution and future

JA Lecaros - Handbook of bioethical decisions. Volume I: decisions …, 2023 - Springer
… In this chapter, I will review the change in biomedical research, from ethical and regulatory
perspectives, which resulted from the use of biobanks as platforms for future use of biological …